hier eine Online-Befragung von der University of California, San Francisco (UCSF) in Zusammenarbeit mit der us-amerikanischen Schilddrüsenkrebs-Patientenorganisation ThyCa . Die Online-Befragung gibt es leider nur auf englisch und spanisch.
Es geht um den Zeitpunkt, wann man sein Kind operieren lassen möchte, in Abhängigkeit von verschiedenen Faktoren.
We are writing to see if you would like to participate in a new research study, Timing of Surgery in Hereditary Medullary Thyroid Cancer – A Discrete Choice Experiment being conducted at University of California, San Francisco (UCSF) by Dr. Maya Lodish and Dr. Sanziana Roman.
Study Purpose: The goal of this study is to investigate what factors influence patient or parental decisions regarding the timing of thyroidectomy in children with Hereditary Medullary Thyroid Carcinoma (MTC) and/or MEN2.
Participation Requirements: The study enrollment involves completion of a 15-minute online survey to better understand what you think about risks and benefits of surgery for your family.
Incentive: In appreciation of your effort and opinions on improving MTC care and outcomes, you will be offered a $20 electronic gift card.
You can contact the UCSF MTC research team at 415-987-5093 or MTCRegistry@ucsf.edu
Research plays an important role in advancing our understanding of clinical care and helps lead to improvements in health.
Participating in research is voluntary. It won’t affect your care if you decide not to participate.
Sincerely,
Maya Lodish, MD, MHSc; Sanziana Roman, MD
.